Click Here to Watch the Malveaux Family take the ALS Ice Bucket Challenge…
The Malveaux Mission supports an aggressive approach to raising awareness of ALS: highlighting scientific research into the causes, treatments and eventual cure of the disease; promoting the important need for ALS research funding; and ultimately helping to bring hope to patients and families affected by this disease.
It was just a year and half ago that my mother, Myrna Malveaux was leading the Mardi Gras parade at her birthday party. Today she is leading the fight against a rare and deadly disease. In November of 2011, Mom was diagnosed with ALS, or Lou Gehrig’s Disease. I’ve set out to learn all I can about ALS. Meet my family and watch our story….
An Update on Myrna Malveaux
Mryna Malveaux Appears on ABC2 News
Myrna and her family recently appeared on ABC2 News in Baltimore to show she makes the most of everyday – even when living with ALS. Check it out…
Latest ALS News
The Malveaux family takes the Ice Bucket Challenge
September 2, 2014
Living with ALS: Seeking Independence and Identity
July 25, 2013
Sharing the burden of ALS
July 25, 2013
Steve Gleason on his life with ALS, mission for a cure
June 17, 2013
Packard Scientists Identify a Small RNA Molecule that Contributes to ALS
June 7, 2013
Living with ALS: Medical Gains Can’t Come Fast Enough
June 6, 2013
Packard Scientists Link Loss of C9orf72 Function to ALS
June 5, 2013
From the Blog
I Have ALS, No Need to Shout!
By Randy Pipkin. Reprinted with permission. Ever since I was diagnosed with ALS (Amyotrophic Lateral Sclerosis) in 2005, I have noticed that people are 100 percent confused about the deadly disease. I need to set the record straight: having ALS … Continue reading
Mom is a uniquely positive and loving person.
Never in word, but by who she is, she teaches me what’s important. She treats everyone equally well, no matter how important or unimportant others think they are. She goes straight to the person in the room others ignore to … Continue reading